“Now he is under control, he is sleeping among us. He has seizures at night, and this is how we feel them. We took turns afraid that something would happen because he might have a sudden death. [no primeiro ano de vida]”, started by counting.
The disease causes crises in little Arthur Maria, who is only two months old. “they look like epilepsy” and makes him overreact to sound and touch. “There are 150 cases in the world (…) We went to study the genealogical tree of my family and Bruno’s family, and my family had four children who died of sudden death, and Bruno too, so I wonder if it was [a mesma doença]”the nurse said.
“When he gets a seizure, he doesn’t breathe, he contracts a lot. So, in the diaper, there is a small device that is a sensor. After 15 seconds without breathing, an audible signal sounds (…) at night you may experience colic, which we cannot control, and a crisis, “ explained Tatiana Oliveira, adding that her son’s seizures had decreased. “dramatically”…
“I think this child was meant for us. We are the parents of Zen. “, concluded.
